Crohn’s, Humira Reactions & Hospitals Won’t Stop Superhero Jo (Podcast 32)

by Steven Wright

Have you ever pooped yourself at the office?

I have.

So has Johanna :).

Or, had a nasty reaction to Humira landing you in the Hospital?

Poked and prodded by the top doctors in Chicago, all in concert singing take more drugs or else, and said umm “No thanks”?

Started a blog, the SCD diet, weekly testing and then sharing those results setbacks and all?

Neither have I.

But Johanna over at the SCD Experiment has.

She’s a courageous, funny young woman who is chronicling her journey back to health.  She wears her heart on her sleeve and tells it like it is.

I have the utmost respect for her.  She is so truthful, raw and funny about a scary situation like Crohn’s disease and I really admire that.  It’s not easy to navigate digestive problems, drugs, jobs and hospital stays.  So when I saw that she was openly sharing it with the world I knew we needed to do a podcast.

Want proof SCD works?

Who doesn’t right, well Jo is doing her best to show it.  If nothing else check out her test results.

Raw, funny and the truth is the best way I can describe the SCD experiment.

Hope you enjoy it!

On this interview podcast with superhero Johanna, we cover:

2:45 How to know your really sick (Warning: Poop talk)
8:08 Humira puts her in the hospital, doctors say Remicade, Johanna say’s not so fast..
17:06 How she started SCD, including tweaks and supplements.
21:30 The biggest insight she had battling Crohn’s disease (It’s not what you think)
28:18 Not everyone has a doctor who listen’s and likes SCD, Johanna talks about how to handle the situation
32:38 How does Johanna know that her amazing progress against Crohn’s is because of the specific carbohydrate diet?

Play

Thanks for coming on show Johanna, your blog is helping us all!

 

 

P.S. – If you can’t see the audio player below, download the MP3 here. Also, make sure you subscribe on iTunes and leave a review – thanks!

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About the author

Steven Wright Steve Wright is a health engineer and author. In 2009, he reached a breaking point when IBS took over his life and the doctors didn't know how to help. Since then, he has transformed his health and started SCDLifestyle.com to help others naturally heal stomach problems. You can check out his story here and find him on Google+, Facebook or Twitter.

The Specific Carbohydrate Diet Works

{ 4 comments… read them below or add one }

Carol Frilegh December 1, 2011 at 9:00 am

Jo says she only went on the starter diet for a few days.
Jo you didn’t do anything wrong. The “starter” or intro as it is called, is only supposed to be followed for a few days, three to five. Three is the ganeral pattern. Elaine advised adding new foods after that, but slowly and carefully of course. There are people who are so sick they cannot do that but they are very few. Jo, your commitment and strict dedication is admirable. It is truly inspiring!

Reply

Jo December 1, 2011 at 4:30 pm

Many thanks lady!!! I thought I was supposed to stay on the starter diet until I stopped having “the Big D.” It was about 1.5 months before I started having consistent regularity and umm… solidity?? lol!

And I am so committed to this diet because it makes me livid that doctors are so quick to blast their patients with all sorts of cancer drugs filled with mouse-proteins. It kills me that people get infections, pancreatitis, develop antibodies, and CANCER unnecessarily!! At the very least, it’s worth it to me to a) learn about SCD, and b) share what I learn with the world so that people that are facing which treatment options are good for them can have a TRUE STORY, accompanied with metrics, as to whether or not SCD works or not.

I’m approaching 3 months and I’m telling you– it has changed my life. I don’t feel like a disabled person anymore.

Reply

Jordan Reasoner December 5, 2011 at 1:53 pm

Awesome comment @JO

I love this: “I don’t feel like a disabled person anymore”

YOU ROCK!

Jordan

Reply

Nora Helfand December 6, 2011 at 12:59 am

Hi, I’m a seventeen-year-old with indeterminate colitis (finally diagnosed about a month ago after being misdiagnosed with celiac in mid-September and then Crohn’s in mid-October). Jo, I cannot tell you how helpful your story was to me this week. I know everybody is different, but I never have heard about an SCD experience much like mine (SCD since the end of October) on here. Unlike some of the voices on here, I don’t have fructose malabsorption, and I tolerate the cow’s milk yogurt and animal fats great. Veggies, which some people on here introduced rapidly, have been very hard for me to introduce. I always felt as if the diet wouldn’t work for me if my symptoms and reactions were so different. But your extra care in introducing foods gradually made me realize that there is definite improvement even when you stay pretty close to Stage 0 over time.

Last Monday I was hospitalized for dehydration, fever, and hypotension, probably caused by a decrease in prednisone that I couldn’t handle. (After it was decided that they would admit me, my parents were going to just drive me to the hospital, but then I fainted in the X-ray room and had to be taken by ambulance…) I was a little scared to listen to this podcast just now because I thought it would be unbalanced about the drug issue…but you were instead very reasonable and I love that. I did get Remicade, but I am at least on SCD and therefore have a framework to get off drugs fast! Last Tuesday they thought I would perforate and need an emergency colectomy, and by Wednesday I had already stabilized. Yesterday the X-ray showed a thinner bowel wall and lowered inflammation and I left the hospital today.

Everybody – no matter who you are, your story can really matter to someone! This crazy week, it was so uplifting to know that I can get better eating as restricted a diet as Jo, and that not everybody has the same pace. Cheers to all our good health!

Reply

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